Wow... it has been three weeks (tomorrow) since I received my diagnosis.
It feels as if it were yesterday. And yet I have already planned so much for the coming months.
I have not stopped planning, e-mailing, updating friends on Facebook and talking on the phone.
Immediately after diagnosis Maxine, my wife, and I traveled to South Warwickshire to break the news and be with our families.
It was really emotional and I have to admit many tears were shed.
Worst was saying goodbye to them…I know I will see them all again soon but it is just that nagging feeling.
The idea of the bucket list came to me almost immediately and I was already referring to it that Friday night when Rob my brother in law invited me to Welford Road to watch Northampton Saints v Leicester Tigers!
Most of the stuff on the list is stuff that has been at the back of my mind for years.
In some way I think the list lacks imagination…but it is personal and that is all that matters to me.
I know that raising a million pounds is a tall order but the way I look at it if I only raise half a million I won’t be a failure.
Fund raising has really started in ernest now.
There will be a big dinner in May and a rugby tournament. The rugby club are doing a naked calendar and I am producing some hoodies.
I know that lots of people want to be involved with the fundraising and when we have the website set up it will be easy to pledge and organise events.
I have been overwhelmed with the amount of love that has poured my way since I let people know my diagnosis.
I really have never done anything exceptional in my life... I have worked hard, played hard and tried to be as good a bloke as I can, often failing miserably.
I have made a lot of brilliant friends through rugby, traveling and work and it is a real shame that something like this has to have happened for me to realise quite how mates I have out there.
Raising awareness of the disease is another thing, I am going to try to remain as visible as long as I can.
With this in mind I am trying to blag my way to meet and get photos with as many ‘celebrities’ as possible.
I think Rob may have managed to get us into the England Rugby team changing room this Saturday for the game against the (New Zealand) All Blacks.
I have also arranged to meet Britain's top skier, Chemmy Allcott) in her hotel (bar) after the race on the 18 December in Val dIsere..
I will let you know how it goes!
I know that there are hard times ahead, but at the moment (apart form my speech and the loss of use in my right arm) I feel great and am looking forward to the next few months with great anticipation.
See you out there
Simon Adams
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Goodluck ! x
ReplyDeletewishing well in your quest.Sure your positive attitude will help you with your fight against this illness. Have you had contact with local MND group ?
ReplyDeleteHi Mr adams, its Gavin and Kyle Perkins Mum here, I wish you all the best and am so very sorry to hear that you have MND, I can always remember you coming over at parents evenings. You will be pleased to hear that Gavin is still at uni doing business and Kyle is at Uni of lancashire doing Forensics, as for sian she turned the corner and came out the other end, she is now a qualified croupier in manchester and looking to go on the ships, so Parkside did not do them too bad. I wish you and your family well
ReplyDeleteCharlene McGowan (Perkins)
Your fantastic courage continues to amaze us. Thank you for Saturday, i know it didn't work out last year but this year was extra special and i know the boys will cherish their experience with you and Max.
ReplyDeleteKeep writing !
xxx
Hi Simon, was great to meet you in Melbourne. I admire what you're doing with your bucket list. It'll take a lot out of you so get that 'oxy moxy' into your drinks for the little extra O2 and don't worry for one second about the next year and what it may bring. These are your best and worst days to come and so many special moments will be the gift you share with all. As scary as hell as it is having this bloody stupid disease, you have the time to make your peace on many fronts. I don't remember all the big things my Dad achieved in his lifetime...I remember his bravery, his sense of humour, his humility and the tears and laughter shared in his last two yrs. Forget about the past...you'll be remembered for being a brave happy soul no matter what you do from here on in. I think you're amazing as will your family and loved ones will long after you leave here. Your beautiful sense of humour will be your tonic in these crazy surreal days to come. Love your work hun...you inspire me :) Thank you
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